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Explains what tardive dyskinesia is, what causes it and what you can do to manage it.
Living with tardive dyskinesia (TD) can be really difficult. But even if you can't get rid of TD, there are still things that could help you manage the symptoms and cope day-to-day. This page has some suggestions for you to consider.
"I have never found anything to help me manage TD but as I have grown older I have found it slightly easier to cope with."
"My wife massaged my neck and arms after the episodes to help with the discomfort."
"My ‘gurning’ has become a bit of a joke in the family and although not everyone can, I find it helps to just laugh about it! Although this doesn’t help with the physical pain it helps with the anxiety TD brings."
You could try contacting a specialist organisation for support for your symptoms, or your diagnosis. You might also find this a way to connect with other people who've experienced TD.
Depending on what sort of support you would find useful, you could think about contacting:
This information was published in April 2018. We will revise it in 2021.
References are available on request. If you would like to reproduce any of this information, see our page on permissions and licensing.